With Grief and Joy — Crip Pandemic Life: A Tapestry, Part II

Photo courtesy of Alecsander Alves.

This second installment of “Crip Pandemic Life: A Tapestry” opens with a reflection on transformative access and its visioning work. We weave this discussion through not only the eight new pieces found within this issue, but also through a reflection on the practices of access and care that enabled the writing, editing, and publication process itself. We conclude with two artifacts: The first is the “Accessible Knowledge Production Manifesto” that emerged as a collectively authored set of demands generated at a workshop we held in connection to the launch of our first installment of “Crip Pandemic Life.” The second is a link to a resource list, “Continuing Threads and Proliferations; Crip Pandemic Life Archive,” compiled by Corbin Outlaw, which links out to other pandemic projects documenting crip, disabled, chronically-ill, mad, and neurodivergent experiences, particularly highlighting experiences not captured within our tapestry of crip pandemic life.

Introduction: Crip Pandemic Life: A Tapestry

Photo courtesy of Alecsander Alves.

“Crip Pandemic Life: A Tapestry” takes up a thread from disability justice writer, educator, and organizer Mia Mingus to assemble an archive that “leaves evidence” and captures experience emergent from crip lives and life in the pandemic. The need to gather, hold space for, and preserve evidence—of our angers, our fears, our griefs, our joys, our pleasures, our communities, and our lives—has, for many of us, never felt more urgent. In this editorial introduction to the first installment of the special section of Lateral, “Crip Pandemic Life: A Tapestry,” we narrate project origins in response to pervasive and obfuscating crisis rhetorics, feelings of indignation, and a desire to gather and preserve evidence of crip life and crip knowledge from within the context of the pandemic. “Crip Pandemic Life: A Tapestry” offers a unique digital archive that brings together creative and scholarly reflections to document the experiences of disabled people during the COVID-19 pandemic. The collection includes a multimodal introductory roundtable; multimedia projects; digital renditions of sculptures, masks, fiber arts, and zines; critical interrogations of pandemic politics and policies; and theorizations of crip sociality. This editorial introduction is our brief overview and invitation for readers to travel through spacetimes, bear witness to, and be cared for by this tapestry, archive, collection.

Crip Pandemic Conversation: Textures, Tools, and Recipes

Screenshot from conversation taken by authors.

“Crip Pandemic Conversation: Textures, Tools, and Recipes,” brings together experts whose scholarship, curation, organizing and artistic work centers crip insights and creativity to reflect on the work that “Crip Pandemic Life: A Tapestry” undertakes. Margaret Fink, Aimi Hamraie, Mimi Khúc, and Sandie Yi each discuss how the pandemic impacted their work, and they join section co-editors Alyson Patsavas and Theodora Danylevich in discussing the tapestry’s content. Their conversation pulls out some of the most salient threads of the work: smallness, grief, care, community-building, tenderness, and pandemic coping tools. “Crip Pandemic Conversation: Textures, Tools, and Recipes” includes an unedited video recording of a Zoom roundtable session, a lightly edited text version of the conversation, and a glossary of terms that appear in the discussion, as a contextualizing access tool located at the bottom of the document. In choosing a preferred way of engaging with the content, we invite readers to consider, as the roundtable participants themselves do, how access (transcripts, zoom recordings, and captions) produces its own caring archive and knowledge-making practices.

Introduction: Cripistemologies of Crisis: Emergent Knowledges for the Present

Photo by author

The increasing recognition of critical disability studies as a generative body of work across disciplines is inseparable from a collective need to make sense of ongoing moments of socio-political crisis, emergency, and exceptionality. Theorizations of crip time emergent from lived experiences of disability are critical to the ongoing work of understanding and surviving a chronically debilitating socio-political context. Our current political moment seems to protract states of crisis to such a degree that the very notions of emergency and crisis shift under the weight of their simultaneous seeming banality and urgent ubiquity. “Cripistemologies of Crisis: Emergent Knowledges for the Present” contends that epistemologies of chronicity, illness, and trauma offer indispensable lenses through which to rethink—and care for—our collective present. The essays within “Cripistemologies of Crisis” reframe our understandings of both social and personal crisis, and explore how crisis and emergency shape the experiences and knowledges of our bodyminds in time and space. The authors collectively offer an epistemological toolkit to theorize and survive everyday states of trauma, madness, and illness as the lived impacts of such quotidian and ongoing violence. “Cripistemologies of Crisis” asks, then, what crip futures can be conjured through a centering of experiential, collective, and speculative ways of knowing with/in/through crisis.