Remote Access is a disability nightlife event informed by disability history, technology, and artistry. At the start of the COVID-19 pandemic, a collective of disabled artists and designers created an event to showcase how disabled people often participate in social life from our homes and beds. This contribution offers a living archive of the party and its evolution, as the planners created protocols for collective access through methodologies such as participatory audio description and live description of musical sound. We discuss how each new event offered opportunities for designing new practices based on disabled knowledge and expertise. As a result, the series of Remote Access nightlife parties became an ongoing opportunity to develop iterative accessibility protocols and community standards for remote/digital participation.
Issues
Corona Look of the Day: Social Media Posts About Disabled Beauty and Resistance in the Time of COVID-19
The authors created a photo and essay series entitled “Corona Look of the Day.” Each day we took photos of outfits paired with colorful makeup and inspired text descriptions about the beauty in disability. These posts were formulated as resistance to the eugenic discourse pervading the early days of the pandemic that argued disabled and elderly deaths were acceptable and probable. In contrast to this bleak assessment, this artistic series sought to affirm disability through uplifting portraiture.
DISTORIES
DISTORIES is a small open-source and open-access Instagram zine project, gathering testimonies from disabled contributors. This project began in the context of the summer of 2021, as mask mandates and general precautions around COVID-19 were being relaxed. Each chapter of the zine is introduced by a question, framing stories and snapshots of experience as well as demands, affirmations, and dreams shared by contributors. The project was stewarded by geunsaeng ahn from September 2021 to July 2022.
The Dedication: Leaving Evidence of Life, Death, Care, and Confinement During COVID-19
In 2020, the COVID-19 pandemic exploded and nursing homes rapidly became overwhelmed with disease, death, and despair. During this time, I learned Sylvia, an old woman with dementia I had befriended, was one of the many old and disabled people confined in nursing homes who did not survive. In this reflective and part personal, part scholarly essay, I leave evidence of and for Sylvia and the nearly 200,000 old and disabled people and care workers who contracted COVID-19 and died within the confines of neoliberal, profit-driven long-term care institutions. Disability justice activist Mia Mingus writes, “We must leave evidence. Evidence that we were here, that we existed, that we survived and loved and ached.” Leaving evidence is a political act, a form of resistance in an ableist word. And yet leaving evidence is particularly challenging in the context of dementia, care, confinement, and death—making it even more important, more urgent. Building on Ellen Samuels’ assertion, “Crip time is grief time,” I consider how mourning Sylvia and countless other nursing home deaths, interwoven with my own experiences of distress, yet also solidified my need to survive, might leave evidence and keep working toward an abolitionist future—one in which old and disabled women like Sylvia, like my future self, might thrive.
Only Together, We Flourish: The Importance of Friendship and Care in Navigating Anti-Asian Hate and Shielding During COVID-19
The COVID-19 pandemic and the response of the government of the United Kingdom have exacerbated deep-seated inequalities. People of color and disabled people have been disproportionately impacted during the pandemic. This essay has two authors, Sophie, a white disabled academic from England, and Denise, an Asian music therapist from Hong Kong; we are friends who live in Bristol. By examining our understanding of the pandemic through our lived experiences and identities, we provide transparency for engaging with our individual and shared perspectives. We use Mia Mingus’s concept of access intimacy to characterize our friendship as one which prioritizes accessibility and a deep understanding of each other’s realities whilst respecting and learning from our differences. We explore the idea of vulnerability and what it means to be made vulnerable during COVID, as well as the notion of ungrievability. Through engaging the concept of embodied belonging we address care as a necessity in response to all the ways in which this pandemic has highlighted and exacerbated vulnerability, ungrievability, and challenges to finding a sense of belonging. We demonstrate solidarity, empathy, joy, love, respect, and a deep reverence for each other and our journeys through hostile environments, providing a counterpoint to the neoliberal structures of oppression as we find ways to live, create, and flourish.
600 mg of Lithium, Quarantine, and “Third-Spaces”
With a mix of prose, critical reflection, and an accompanying series of drawings inside a daily planner, this intimate essay reimagines multiple conceptions of “space” in relation to different kinds of sickness and wellbeing. Meditating on COVID-19 quarantine spaces and bipolar disorder mood/mind-spaces allowed me to discover messied “third” spaces that explore margins, and complicate ideas of boundaries and binaries. Doing so allowed me to think through new possibilities of healing, restoration, and intimacy when we talk about mental health. I offer up my personal account of a young female Asian American graduate student navigating a ten-year struggle with clinical bipolar disorder, and the personal experiences of “madness,” relapse, and recovery during the winter and spring of 2021. I reflect on my daily routines inside my 800-square-foot apartment and my growing realization that prevailing ideas of “space” are incomplete and contradictory—but can be replete with futurities and learning possibilities. Fittingly, this creative piece does not endeavor to offer any neatly packaged analysis or solid conclusions. Instead, I present one account of grappling with mental illness under extraordinary circumstances and hope it can speak to individual and collective discussions on mental health, disability, and spatiality.
For Graduate Students, When the Sadness is Unbelievable: How to Research and Write If We Must When the World is on Fire
This essay is a meditation on the place of grief in graduate student life, an accounting for the ways that the pandemic has shaped research and the work that disabled graduate students have had to do to stay afloat. I begin by meandering through the grief of a family bereavement into the range of other kinds of crip grief that emerged at the start of the COVID-19 pandemic. Thinking with grief across scales, I ask the following questions: what might it mean to research and to write when our fields of inquiry shift even as they are being studied? How might we hold on to hope as a political practice even as undercurrents of grief work to wash it away? Where and how might we find and work with methodologies and practices that prioritize our embodied experiences during precarious, difficult times? Drawing on Melissa Kapadia’s work on chronic illness methodology and Gökce Günel, Saiba Varma, and Chika Watanabe’s manifesto for patchwork ethnography, I attend to the place of patchwork as a survival strategy for and beyond field research. Ultimately, this essay works with grief’s non-linearity, patching together memories and experiences to document one experience of the early years of the pandemic as means of making the aloneness of our graduate journeys less commonplace.
The Place and Pace to Remember: Keeping What the Pandemic Has Given Us
We begin with the question “what do we want to keep that the pandemic has given us?” Largely co-written in 2021, this reflexive essay serves as a snapshot in time, at one stage of the pandemic, reflecting upon earlier, shared experiences at one institution of higher education. We locate each of our identities and positionalities in that space and beyond. Our essay uses Moya Bailey’s 2021 discussion of an ethics of pace to frame our thinking and collective memory work and to counter what we identified as the distinct efforts of institutions of higher education to not have places for institutional memory. We articulate that without memory places, it is impossible to build both a history of justice work in institutions of higher education and accountability that this justice work is seen through. And we ask, how are we to build justice and healing in higher education when the place is designed so that we can’t remember things, and when there seems to be a goal to not have institutional memory that remembers how, why, and by whom justice work is done? We answer the question: “what do we want to keep that the pandemic has given us?” with this: “the pace and place to remember.”
For the Moment, I Am Not Scrolling
Andrew Culp and Cultural Studies Association’s New Media and Digital Cultures Working Group Co-Chair Claudia Skinner take a look into Adi Kuntsman and Esperanza Miyake’s new book Paradoxes of Digital Disengagement: In Search of the Opt-Out Button, published by University of Westminster Press (2022). This podcast is accompanied by a scholarly commentary by Tero Karppi.
Review of The Breaks: An Essay by Julietta Singh (Coffee House Press)
Julietta Singh uses an epistolary tradition to meditate on pressing challenges in the contemporary moment. She fixates on a resounding theme: how must we break from existing systems to truly center the most vulnerable in our institutions and epistemologies? In a long-form letter to her six-year-old daughter, Singh reflects on queer life and architecture, family trauma, radicalization, and collective mobilization.
Review of Elite Capture: How the Powerful Took Over Identity Politics (And Everything Else) by Olúfẹmi O. Táíwò (Haymarket Books / Pluto Press)
The discourse surrounding identity politics has become fraught with misunderstanding and co-optation by forces across the political spectrum. What was once a radical discourse initiated by the queer, Black, and Indigenous feminists of the Combahee River Collective has become a movement defined by incapacity, stigmatization, and misinterpretation. Olúfẹ́mi O. Táíwò sets out to clarify the nature of the identity politics movement and its relationship to the powerful institutions and individuals which have misappropriated the original radicalism of this idea to serve their own political gains. Through a materialist and narrative approach to identity politics and social critique, Táíwò argues that the problem is not with identity politics as such, but a specific power called “elite capture,” which stifles the potential latent in identity politics and genuine leftist social organizing. He concludes that, rather than deferring responsibility and accepting symbolic gestures of empty representation, we must begin to construct a new politics and a new house altogether.
Review of Spectacle and Diversity: Transnational Media and Global Culture by Lee Artz (Routledge)
Lee Artz’s Spectacle and Diversity: Transnational Media and Global Culture brings to our attention the ways transnational media has created representations of global culture. By analyzing examples of nations with transnational media networks he acknowledges how each nation’s media culture has become a reflection of transnational ideals. Artz critiques the transnational ideals that benefit elites and the careful fusing of the themes such as self-interest, social mobility, and individual successes into media to maintain the status quo. The book concludes with a plea for a non-capitalist international movement to bring forth a new media wave, which might benefit the interests of humanity.
Review of Warring Visions: Photography and Vietnam by Thy Phu (Duke University Press)
Thy Phu’s Warring Visions: Photography and Vietnam draws on archives of the Vietnam War that center Vietnamese perspectives to complicate the historical and contemporary visual representation of Vietnamese identities that have been filtered through the Western narrative of the Vietnam War. Her book emphasizes the significance of typically denigrated visual materials including propaganda and vernacular photographs. She focuses on the complex deployment and reception of photographic objects as politicized symbols, sources of memorialization, and identity formation.
Review of Media and the Affective Life of Slavery by Allison Page (University of Minnesota Press)
In Media and the Affective Life of Slavery, Allison Page interrogates how media culture from the 1960s to the present has mobilized the legacy of slavery for affective governance, or “the production and management of affect and emotion to align with governing rationalities” (6). Throughout the book, Page’s analysis succeeds in providing a rich mapping of the converging interests of state actors, media producers, educational organizations, and other stakeholders as they narrate their own desire to manage emotions in the wake of the civil rights movement and to maintain white supremacist order.
Review of Making Livable Worlds: Afro-Puerto Rican Women Building Environmental Justice by Hilda Lloréns (University of Washington Press)
This review examines Hilda Lloréns’s research into the role that Afro-Puerto Rican women play in advocating for environmental justice and building a sustainable environment in the Puerto Rican archipelago, particularly after the devastation left behind by Hurricanes Irma and Maria in 2017, and the subsequent catastrophic effects of COVID-19 in 2020. Lloréns shows that Afro-Puerto Rican women are able to survive in the face of racial and ecological discriminations and marginalizations, and their survival is emblematic of Puerto Rico’s own survival. The author devotes the entirety of her book to show that as an “ethnographer of home,” as she calls herself, it is essential for people to create livable worlds within which they can survive. Survival in the midst of catastrophic climate change is difficult, Lloréns argues, primarily because Puerto Ricans are often on the receiving end of austerity measures that make their existence tenuous, at best. These austerity measures typically come after a climatic event, and result in limited access to clean water, food, electricity, healthcare, housing, and education, which only serve to exacerbate the desperation that many on the island feel. While this desperation was widespread across the island after the hurricanes in 2017, residents in the southeastern region of the island (predominantly Afro-Puerto Ricans) were even more affected. Lloréns shows how these people used their limited resources to cull an existence out of a seemingly hostile land and create a community that sustained them. Lloréns draws on personal experiences, the experiences of her family, ethnography, anthropology, and interviews to show how vital it is to examine Puerto Rico not as a homogenous space but rather as a heterogeneous one with its unique complexities. And by centering the work and experiences of Black Puerto Ricans, Lloréns gives voice to a group that is largely left on the margins of society, but who demonstrates the importance of building community as a sustaining entity.